Showing posts with label inspiration. Show all posts
Showing posts with label inspiration. Show all posts

Tuesday, October 30, 2012

Unreasonable Canadians: Judith Snow


As part of the 31 for 21 challenge, every Wednesday during October I am celebrating an unreasonable Canadian who has inspired me with their courage and vision—through their writing or their advocacy for a world where all are welcome, and safe! Today I celebrate Judith Snow.

Judith is so unreasonable, she dared to break out of a long-term chronic care institution with the help of a group of friends that evolved into a unique circle of support known as the Joshua Committee, and went on to pave the way for individualized funding for attendant care, get an MA, advocate for inclusion and change, teach and mentor families and individuals to name and reach their dreams of living in community, have a play written about her, go kayaking,  become a visual artist, and in her most recent incarnation, start a unique visual arts program called Laser Eagles.
"Red" copyright Judith Snow, http://www.lasereagles.com/assets/thumbs/d90aa_judith_red_8x10.jpg 

I first met Judith at a week-long institute on inclusion at McGill University in Montreal, when Jessie was only two years old. Judith held me spell bound and in great awe as she shared her vision, her acerbic wit, and her sharp, and I think brilliant mind with those of us gathered from around the world to leran more about inclusion and to support each other in the journey. 

Find out more about Judith by reading any of her provocative and insightful writing. What she is saying is so simple (listen) and radical (listen with your full attention). 

Or order Behind the Piano and What’s Really Worth Doing and How to Do It from Inclusion Press. Circles of support and person-centredplanning really started with Judith. So we owe this highly unreasonable Canadian a great debt!

Thursday, September 9, 2010

Who's Your Role Model?

Our constant haggling over the Jonas Brothers (okay, MY constant haggling) has had new wood added to the fire as Tanya and Nancy—Jessie’s teachers at Storefront—told her yesterday that the Jonas Brothers were not appropriate role models for a young woman of her age. She was more than slightly miffed as she shared this little piece of her day with me.

Taylor Hicks, Season 5 American
Idol winner lining up for JB tickets
I do wonder, sometimes, where she gets this tendency to fawn over TV/pop stars from and am quick and happy to blame it on Dan. Not that he would even deign to watch the show, but he is the guy who can relate to late nights watching movies on TV. His are usually in black and white and involve long-dead actors and auteurs, but that doesn’t stop me from pining the fame blame on him.

When Jessie was little, I wouldn’t even have Barbies in the house. At least not until I was forced to let one in when it came as a gift and I was obliged to welcome it as an act in our moral commitment to inclusion. Really! It was my first ethical conundrum around inclusion because all of Jessie’s friends were playing with Barbies and by denying her that experience, I risked further separating her from her peers. Of course, as all parents will tell you, things change. You let your moral compass shift slightly off true North and welcome any diversion that will buy you more than 5 minutes alone in the bathroom, or, in our case, any diversion or interest that will connect your child to their peers.

However, the Jonas Brothers, and all things Jonas and Camp Rock and Disney, are driving me to distraction and may even require some serious intervention. I’m just not absolutely sure who needs the intervention.

Do I lay down the line as to what I deem acceptable as entertainment and as a way to spend one’s time, or do I respect her choices? We have tried to lead her to other sources of joy. There is no doubt in Dan’s mind that my proclivity is toward social justice and that I see beauty in magnolias, not Miley Cyrus. Dan himself loves baseball, biographies, and jazz. Most of our family games (and we have played LOTS of family games) were of the cooperative variety; the TV shows she watched growing up were on TVO and PBS; best-loved stories were often the classics (Wind in the Willows, Little Women, Charlie and the Chocolate Factory, The Story of Rosa Parks); and outings were usually to farms and museums and rarely to any place that had a roller coaster.

When Jessie shared her dismay (or was it disdain?) about Tanya and Nancy’s response to her chosen role models, she was taking a risk, because she knew full well my own opinion about the Jonas Brothers. So I took a moment to reflect (instead of jumping on the bandwagon), and asked her if she could explain WHY the Jonas Brothers were her role models. She came up with a pretty good answer: because they loved music, they respected their mother, they were family oriented, they were fun-loving, and they wanted to share their love of music with everyone. That, I pointed out, made sense. She grinned.

Then she thought for a while and said “Okay. Maybe I just shouldn’t share that with them. Maybe the Jonas Brothers can be my role models but I just don’t tell them that.” That, to my mind, was an interesting and thoughtful solution. And we talked about what we share with other people and how we choose the appropriate place and people with whom we share certain interests. Let’s face it. She does have a few friends (both with and without disabilities) who love the Jonas Brothers.

She was quiet for a moment and then said “But I also think of Nellie McClung, from the Famous Five (women who fought for women’s rights in Canada) as a role model I guess, and Nelson Mandella.” (I admit, this made me feel a bit better about my parenting skills.) We talked more about role models and what they mean to us and how we find new role models as we mature and meet the world in different ways. We talked about her former dance teacher and mentor, Hannah Beach, as being a role model, and Craig Keilburger (Canadian activist for the rights of children), and Alito Allessi (the founder of DanceAbility).

I also realized that since she has exited formal schooling (i.e., classes in English, Civics, Geography etc.) she is not as exposed to new people and ideas as she was. She doesn’t read the newspaper, doesn’t really listen to the news, rarely watches current affairs TV, and our days seem so filled that there is not as much time as there used to be to discuss current events or social issues. That’s something I hadn’t really thought about as we transition into adulthood, and I realized that it’s something we might need to address (although I am not sure how!).

But as I watched her process and think and be willing to consider new ways of stepping out into the world, I began to feel very proud of her. Even though she loves the Jonas Brothers, she also loves her best friends, her family, and her art. She is passionate, determined, loyal, and has an uncanny ability to believe in something even when the world is trying to force her in a different direction. She is unafraid to dance on the beach to music that only she can hear, and if only more of us were willing to do that, it might be a more interesting world. So maybe Jessie should be MY new role model.

Photo source: http://igossip.com/gossip/Photo_from_Taylor_Hicks_is_not_a_Hick_Till_Proven_Otherwise--/633