Wednesday, December 5, 2012

Subject: Like Seriously

Yesterday, I woke up early to work on a looming (is there every any other kind?) deadline. Of course, it is on morning like this that you can almost guarantee that Jessie will not wake up and just go about her usual routine. No, it is on mornings like this (after a Monday morning where she slept in TWO HOURS past her alarm and missed work at the Foodbank) that she will choose to challenge every little bit of routine that we might demand of her.

We collectively devised a very simple routine with just a few simple rules (like the Rule of One, and we know how well that is working) that she has agreed to follow. We review why we have this list: to help her become more independent, but mostly so we DON’T FIGHT about what she is supposed to do. So, on this morning, of course, because I have a deadline, because I gave her 2.5 hours of my billable time yesterday to drive her to a performance to celebrate International Day of Persons with Disabilities, because, just because, she slept in and why follow a routine anyways? Yes, on this morning, she decides to push every button and limit. From deciding to go straight on to the computer (no breakfast, no getting dressed) . . .

what she was working on on her computer ... and I know this because she LEFT HER COMPUTER ON  when she went off to rehearsal

. . .  to yelling at me because it is almost time to leave and she is missing her bus pass and her wallet and . . . (but she always throws in a few responsible accomplishments into the mix, like brushing and “waterpik”ing her teeth, putting in a load of laundry and responding to e-mails).

This absolute panicked fear of mine that work and words will not have space to bloom (or even just meet deadlines) appears to be a common advent theme amongst some of my favorite bloggers (when I get a chance to read them). See Addie and her missing babysitter, or Amy Julia's ordinary hard stuff.

At any rate, its all good when I can email my love at work. Somehow the venting lets me move on to the next page, both literally and figuratively.



6 comments:

Krista said...

I love that she was planning her wedding. It somehow gives me hope even amongst your frustrations, which I also fear.

Nan said...

I think the frustrations ... if my friends are any indication . . . come mostly with the age, not the disability. I think if I had blogs to read, and parents of teenagers and young adults actually wrote honest blogs, I would be frightened of this age too! So, have no fear! Just, mostly, a deep deep deep sense of humour (and great friends)

Margaret Bender said...

I loved this...just a normal kid, dreaming about her future and testing her mother..and I how did I end up with three of them :)

Becca said...

Oh, that wedding planning is so WONDERFUL!!!! (okay, how MAD is she going to be that you posted her stuff on your blog? And, for that matter, how mad does she get that you blog about her at all? Or does she love it?) Anyway, yep, I expect we'll have days much like that. Samantha's already showing those colors...

Nan said...

Becca ... you have no idea what i DON'T post! But, she loves me sharing her wedding planning with anyone, because it means that it is "honoured" (I can't think of a better word). I do ask her, believe it or not. AND she gets her say every Friday, so there is that balance. SHe LOVEs the fact that people from around the world read about her and care! AND she is a limelight hog, a typical actor/performer.

Becca said...

Whew! That's good to know. LOL